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Minnesota DeafBlind Project Family Needs Survey Spring 2023
1.
Please share your favorite things about your child. What makes them amazing?
2.
What are some of the challenges you face as a parent of a child with deafblindness?
3.
How did you learn about the Minnesota DeafBlind Project?
My child's school or district (please specify below)
Minnesota Hands and Voices
My child's doctor (please specify below)
Another family
Website, Google search
Minnesota Department of Education
PACER
Other (please specify below)
Please specify:
4.
What areas would you like more information and supports about?
Communication development
What are Interveners and why might my child need one?
Person-centered planning
Creating a network of support for child and family
Adapted literacy
Impact of vision and hearing loss
Playing to Learn: Active Learning Strategies
How to share information with school teams
Resources available to families
Transition to adult life
Other (please specify)
5.
Where do you go for information and resources related to deafblindness?
6.
What supports from the Minnesota DeafBlind Project would be most helpful for your family?
Parent workshops/trainings
One-to-one support
Access to resources and information
Networking with other families
Referrals to other organizations
Other (please specify)
7.
How would you like information about resources to be shared with you? (Select all that apply)
Email
Training
Printed material sent via regular mail
Text
Newsletter
Social media (specify below)
FaceBook
Instagram
Twitter
I don't use any
Other (please specify)
8.
What other family support organizations are you connected with?
DeafBlind Services Minnesota
PACER Center (Minnesota)
Minnesota Hands and Voices
State Services for the Blind (Minnesota)
DeafBlind Consumer Directed Supports (Minnesota)
Technology and Training Access Program (Minnesota)
National Family Association of DeafBlind (National)
Helen Keller National Center (National)
Charge Syndrome Foundation (National)
Usher Syndrome Coalition (National)
Other (please specify)
9.
Last year, we began sending out MNDBP Newsletters for families.
What have you found most beneficial about the newsletters?
10.
If you have other ideas of what to include, what would you like to see added to the newsletter?
11.
Would you be interested in a mini webinar series geared specifically for families of children who are deafblind? These sessions would be held virtually for 45-60 minutes.
Yes
No
Other (please specify)
12.
What day of the week and time of day would be best for you to attend a virtual parent only training?
Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
Sunday
Morning
Lunch
Afternoon
Evening
Other comments...
13.
Have you attended any of our in-person events in the past?
Family & Intervener Appreciation Picnic
Mom's retreat
Winter party
Swimming event
Bowling event
Understanding Deafblindness and the Role of the Intervener
Charting the C's Family Day
Other parent workshops
Focus groups
I have not attended any events yet
If so, what was most impactful about the event?
14.
Is there anything you would like to share with us or a suggestion as to how we can better meet your needs? Please share your thoughts.
15.
What is the primary language used in your home?
English
American Sign Language
Spanish
Hmong
Somali
Karen
Other (please specify)
16.
In what age range is your child?
0-5
6-10
11-13
14-17
18-21
17.
(optional) Your name and your child's name. *To be added into our drawing for the $50 Target gift cards, please include your name.
18.
(optional) Email address
Current Progress,
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