Erythromelalgia Support Group |
Rare Diseases & Loneliness
My name is Kristie and I have Erythromelalgia. I was diagnosed in 2016 and have experienced many challenges. Thanks to my EM support group, I was able to overcome the beginning stages; accepting my new way of living with EM. I am also a doctoral student at the University of Southern California, and my mission is to create an organization or a new innovative service to better support the rare disease community. A large part of my mission is to educate people about the negative effects of loneliness, and helping improve the quality of lives for individuals with rare diseases. Your feedback is the key to the solution. Your feedback is 100% anonymous. Please feel free to contact me with any additional questions at Kristiec@usc.edu