Clinical Trials: What Matters To You

Thank you for your interest in our survey

The purpose of the survey is to understand how people with PAH feel about clinical trials. Specifically, we want to understand reasons why patients may or may not want to participate in clinical trials. This survey is being conducted by Dr. Jason Weatherald in partnership with PHAUK. The results of this survey will help researchers design new clinical trials that are more relevant to patients and minimize the burdens of participating. There are 70 questions and the survey may take 25-30 minutes to complete.

Demographics

Question Title

* 1. How old are you?

17 or under

18-24

25-34

35-44

45-54

55-64

65+

Question Title

* 2. Which of the following describes you best?

Female

Male

Non-binary

Transgender

Intersex

I'd prefer not to say

Other (please specify)

Question Title

* 3. What is your ethnicity? (optional)

MIXED / MULTIPLE ETHNIC GROUPS White and Black Caribbean; White and Black African; White and Asian; Any other Mixed/Multiple ethnic background

ASIAN / ASIAN BRITISH Indian; Pakistani; Bangladeshi; Chinese; Any other Asian background

BLACK / AFRICAN / CARIBBEAN / BLACK BRITISH African; Caribbean; Any other Black / African / Caribbean background

WHITE English / Welsh / Scottish / Northern Irish / British; Gypsy or Irish Traveller; Any other White background

OTHER ETHNIC GROUP Arab; Any other ethnic group

I would rather not answer

Question Title

* 4. How fluent is your English?

Very fluent

Fluent

Not fluent

Question Title

* 5. What device are you using to complete this survey?

A mobile phone

A tablet

A laptop or desktop computer

Other (please specify)

Question Title

* 6. What type of PH do you have?

Idiopathic Pulmonary Arterial Hypertension (IPAH)

Heritable Pulmonary Arterial Hypertension (HPAH) -with an identified genetic mutation

Pulmonary Arterial Hypertension in association with Systemic Sclerosis

Pulmonary Hypertension in association with congenital heart disease

Pulmonary Hypertension due to lung diseases

Chronic Thromboembolic Pulmonary Hypertension (CTEPH)

I don't know what type of PH I have

Other (please specify)

Question Title

* 7. How long has it been since your diagnosis of PH?

Less than 6 months

6 months - 1 year

1-2 years

2-3 years

Over 3 years

8% of survey complete.