Addressing barriers to clinical trial accrual in patients with lung cancer: A survey based approach

Thank you for participating in this survey about clinical trials and clinical trial accrual. A clinical trial is a study that tests new treatments to see if they are effective and safe. Clinical trial accrual is the process of getting people to join a clinical trial. There are different ways researchers try to get people to join. They might talk to doctors, send information out, or use the internet. Sometimes it can be hard to get enough people to join clinical trials . There are a few reasons why this happens. These reasons are called barriers. Some of the most common barriers are lack of information, fear of side effects, too much time/trave required. It's important to overcome these barriers so that clinical trials have enough participants to help find new treatments that can help save lives or improve health. Your answers to this survey will help us understand factors that influence clinical trial accrual the most.

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* 1. Are you a current/past patient with lung cancer?

Yes

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* 2. Age:

18-39

40-64

65+

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* 3. Your sex at birth

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* 4. Sexual orientation

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* 5. Race/Ethnicity

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* 6. Marital status

Single

Married

Divorced/Separated

Widowed

In a relationship

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* 7. Highest level of education

High School

College

Graduate Degree or Beyond

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* 8. State and County

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* 9. Type of location where you receive or received your cancer care

Academic Center/ Cancer Center

Community setting/ Local Doctor

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* 10. Has your cancer spread to other organs?

Yes

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* 11. Have you ever enrolled in a clinical trial ?

Yes

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* 12. If you answered NO to the previous question, why?

No interested

I was told I was not eligible

I was not offered any clinical trials

Other (please specify)

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* 13. To what extent would having these financial resources lead you to participate in a clinical trial?

	Not at all	Somewhat likely	Likely	More likely	Extremely likely
Provided Uber/gas card/parking/meals for trial related activities	Provided Uber/gas card/parking/meals for trial related activities Not at all	Provided Uber/gas card/parking/meals for trial related activities Somewhat likely	Provided Uber/gas card/parking/meals for trial related activities Likely	Provided Uber/gas card/parking/meals for trial related activities More likely	Provided Uber/gas card/parking/meals for trial related activities Extremely likely
If housing /airfare for clinical trial related activities were provided	If housing /airfare for clinical trial related activities were provided Not at all	If housing /airfare for clinical trial related activities were provided Somewhat likely	If housing /airfare for clinical trial related activities were provided Likely	If housing /airfare for clinical trial related activities were provided More likely	If housing /airfare for clinical trial related activities were provided Extremely likely
Knowing in advance what clinical trial related costs will not be covered	Knowing in advance what clinical trial related costs will not be covered Not at all	Knowing in advance what clinical trial related costs will not be covered Somewhat likely	Knowing in advance what clinical trial related costs will not be covered Likely	Knowing in advance what clinical trial related costs will not be covered More likely	Knowing in advance what clinical trial related costs will not be covered Extremely likely
If the clinical trial provided full coverage for medications to treat side effects from clinical trial drugs ie: creams for a rash	If the clinical trial provided full coverage for medications to treat side effects from clinical trial drugs ie: creams for a rash Not at all	If the clinical trial provided full coverage for medications to treat side effects from clinical trial drugs ie: creams for a rash Somewhat likely	If the clinical trial provided full coverage for medications to treat side effects from clinical trial drugs ie: creams for a rash Likely	If the clinical trial provided full coverage for medications to treat side effects from clinical trial drugs ie: creams for a rash More likely	If the clinical trial provided full coverage for medications to treat side effects from clinical trial drugs ie: creams for a rash Extremely likely

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* 14. To what extent would having access to these services lead you to participate on a clinical trial?

	Not at all	Somewhat likely	Likely	More likely	Extremely likely
Offered a video or phone option for trial related visits	Offered a video or phone option for trial related visits Not at all	Offered a video or phone option for trial related visits Somewhat likely	Offered a video or phone option for trial related visits Likely	Offered a video or phone option for trial related visits More likely	Offered a video or phone option for trial related visits Extremely likely
Coordination of appointments ie: all scans on same day	Coordination of appointments ie: all scans on same day Not at all	Coordination of appointments ie: all scans on same day Somewhat likely	Coordination of appointments ie: all scans on same day Likely	Coordination of appointments ie: all scans on same day More likely	Coordination of appointments ie: all scans on same day Extremely likely
More flexibility in scheduling trial related visits and scans	More flexibility in scheduling trial related visits and scans Not at all	More flexibility in scheduling trial related visits and scans Somewhat likely	More flexibility in scheduling trial related visits and scans Likely	More flexibility in scheduling trial related visits and scans More likely	More flexibility in scheduling trial related visits and scans Extremely likely
Option to have your blood drawn at home or at a location of your choice	Option to have your blood drawn at home or at a location of your choice Not at all	Option to have your blood drawn at home or at a location of your choice Somewhat likely	Option to have your blood drawn at home or at a location of your choice Likely	Option to have your blood drawn at home or at a location of your choice More likely	Option to have your blood drawn at home or at a location of your choice Extremely likely

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* 15. To what extent would each of these communication factors lead you to consent to a clinical trial?

	Not at all	Somewhat likely	Likely	More likely	Extremely likely
More culturally diverse study team members	More culturally diverse study team members Not at all	More culturally diverse study team members Somewhat likely	More culturally diverse study team members Likely	More culturally diverse study team members More likely	More culturally diverse study team members Extremely likely
A simple easy to understand sheet of paper explaining clinical trial design/ what it means to consent and the process around that / time commitment once enrolled on a clinical trial	A simple easy to understand sheet of paper explaining clinical trial design/ what it means to consent and the process around that / time commitment once enrolled on a clinical trial Not at all	A simple easy to understand sheet of paper explaining clinical trial design/ what it means to consent and the process around that / time commitment once enrolled on a clinical trial Somewhat likely	A simple easy to understand sheet of paper explaining clinical trial design/ what it means to consent and the process around that / time commitment once enrolled on a clinical trial Likely	A simple easy to understand sheet of paper explaining clinical trial design/ what it means to consent and the process around that / time commitment once enrolled on a clinical trial More likely	A simple easy to understand sheet of paper explaining clinical trial design/ what it means to consent and the process around that / time commitment once enrolled on a clinical trial Extremely likely
A video from the doctor running the clinical trial reviewing the background of the clinical trial and the process to consent to the trial	A video from the doctor running the clinical trial reviewing the background of the clinical trial and the process to consent to the trial Not at all	A video from the doctor running the clinical trial reviewing the background of the clinical trial and the process to consent to the trial Somewhat likely	A video from the doctor running the clinical trial reviewing the background of the clinical trial and the process to consent to the trial Likely	A video from the doctor running the clinical trial reviewing the background of the clinical trial and the process to consent to the trial More likely	A video from the doctor running the clinical trial reviewing the background of the clinical trial and the process to consent to the trial Extremely likely
Access to patient / nurse navigator who will guide you through the clinical trial process from consent to starting treatment on the clinical	Access to patient / nurse navigator who will guide you through the clinical trial process from consent to starting treatment on the clinical Not at all	Access to patient / nurse navigator who will guide you through the clinical trial process from consent to starting treatment on the clinical Somewhat likely	Access to patient / nurse navigator who will guide you through the clinical trial process from consent to starting treatment on the clinical Likely	Access to patient / nurse navigator who will guide you through the clinical trial process from consent to starting treatment on the clinical More likely	Access to patient / nurse navigator who will guide you through the clinical trial process from consent to starting treatment on the clinical Extremely likely
A referral to support groups and resources providing information about your diagnosis and common questions you should ask your medical team	A referral to support groups and resources providing information about your diagnosis and common questions you should ask your medical team Not at all	A referral to support groups and resources providing information about your diagnosis and common questions you should ask your medical team Somewhat likely	A referral to support groups and resources providing information about your diagnosis and common questions you should ask your medical team Likely	A referral to support groups and resources providing information about your diagnosis and common questions you should ask your medical team More likely	A referral to support groups and resources providing information about your diagnosis and common questions you should ask your medical team Extremely likely

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* 16. To what extent would having these resources lead you to participate in a clinical trial?

	Not at all	Somewhat likely	Likely	More likely	Extremely likely
A simple sheet of paper explaining expected and potential side effects/ and how they will be managed	A simple sheet of paper explaining expected and potential side effects/ and how they will be managed Not at all	A simple sheet of paper explaining expected and potential side effects/ and how they will be managed Somewhat likely	A simple sheet of paper explaining expected and potential side effects/ and how they will be managed Likely	A simple sheet of paper explaining expected and potential side effects/ and how they will be managed More likely	A simple sheet of paper explaining expected and potential side effects/ and how they will be managed Extremely likely
Opportunity to report your symptoms as part of the clinical trial	Opportunity to report your symptoms as part of the clinical trial Not at all	Opportunity to report your symptoms as part of the clinical trial Somewhat likely	Opportunity to report your symptoms as part of the clinical trial Likely	Opportunity to report your symptoms as part of the clinical trial More likely	Opportunity to report your symptoms as part of the clinical trial Extremely likely
A video from the doctor running the clinical trial about expected side effects and potential side effects and how they will be management	A video from the doctor running the clinical trial about expected side effects and potential side effects and how they will be management Not at all	A video from the doctor running the clinical trial about expected side effects and potential side effects and how they will be management Somewhat likely	A video from the doctor running the clinical trial about expected side effects and potential side effects and how they will be management Likely	A video from the doctor running the clinical trial about expected side effects and potential side effects and how they will be management More likely	A video from the doctor running the clinical trial about expected side effects and potential side effects and how they will be management Extremely likely
Increased access to the clinical trial team and more frequent check ins from clinical trial team regarding symptoms	Increased access to the clinical trial team and more frequent check ins from clinical trial team regarding symptoms Not at all	Increased access to the clinical trial team and more frequent check ins from clinical trial team regarding symptoms Somewhat likely	Increased access to the clinical trial team and more frequent check ins from clinical trial team regarding symptoms Likely	Increased access to the clinical trial team and more frequent check ins from clinical trial team regarding symptoms More likely	Increased access to the clinical trial team and more frequent check ins from clinical trial team regarding symptoms Extremely likely