Impact of Rare Endocrine Diseases on Young People (ages 18 to 25) |
Introduction
AMEND is a patient group charity that helps families with your rare disease. We want to understand how your disease affects you, and what kinds of activities you'd like to do and learn with others who have rare diseases like you. The wider survey is aimed at young people aged 12 to 25, but this arm of the survey is only for those aged 18 to 25. Please answer all the questions as this will help us plan events for you and other young people with your rare disease.