Lupus Peer Network Needs Assessment

Overview

Introduction: Lupus Canada is exploring the creation of a virtual peer network for people living with lupus across Canada and their caregivers. This survey will help us understand what kind of support people want, what makes virtual groups feel safe and accessible, and how the program should be designed. Your responses will inform planning for workshops and a future pilot program.

Privacy Notice: Your participation is voluntary, and you may skip any question. We recommend not including names or identifying details in open-text responses. Survey results will be summarized in aggregate (group level) and reviewed by a small Lupus Canada project team to support program planning. If you provide contact information for updates or follow-up, it will be kept separate from your survey responses and used only for that purpose.

Support: Some questions will ask about your experiences living with lupus which may bring up emotions. If you feel uncomfortable, you can stop at any time. For lupus-related supports and resources, visit www.lupuscanada.org. If you need immediate help, contact local emergency services.

Virtual Workshop Participation: We will be hosting a small number of virtual workshops beginning in April 2026 to help shape the format, topics, and guiding principles of the peer support network. If you are interested in participating, you will have the opportunity to fill out additional questions at the end of this survey to provide your contact information. Virtual workshop participants will be provided an honorarium for their time.

By completing and submitting this survey, you acknowledge that you have read the information above and agree to participate.

Estimated time to complete survey: ~10-12 mins